Useful websites
Below is a list of websites you may find useful. If you would like to add your site to this list, or add a link to this site from yours, please contact James Dargo.
Action for Sick Children
Action for Sick Children is the UK's leading children's healthcare
charity, specially formed to ensure that sick children always receive the
highest standard of care possible.
ADDISS
ADDISS provides people-friendly information and resources about Attention
Deficit Hyperactivity Disorder to anyone who needs assistance — parents,
sufferers, teachers or health professionals.
Advisory Centre for Education (ACE) df
The Advisory Centre for Education is an independent advice centre for parents,
offering information about state education in England and Wales for
5-16-year-olds. They offer free advice on many topics like exclusion from
school, bullying, special educational needs and school admission appeals.
Afasic
— overcoming speech impairments
Afasic is the UK charity representing children and young adults with
communication impairments, working for their inclusion in society and
supporting their parents and carers. Afasic is also a recognised training
provider for parents and professionals.
After
16 — Whats New?
This is for people with a wide range of abilities and disabilities, so not all
of it may apply to you.
Association for Spina Bifida and Hydrocephalus
(ASBAH)
ASBAH is the national organisation providing information and advice about spina
bifida and hydrocephalus to individuals, families and carers.
Barnardo's
Barnardo's helps the most vulnerable children and young people transform
their lives and fulfil their potential. Their website will tell you more about
what they do and their work with children and young people as well as how you
can help them to continue their work.
British Association for
Teachers of the Deaf (BATOD)
BATOD was formed in 1977 by the amalgamation of the National College of
Teachers of the Deaf (NCTD) and the Society of Teachers of the Deaf (STD).
BATOD is the only association representing the interests of teachers of
hearing-impaired children and young people in the United Kingdom.
British Dyslexia Association (BDA)
The BDA is the voice of dyslexic people. Their vision is that of a
dyslexia-friendly society that enables dyslexic people to reach their
potential.
British
Deaf Association
The BDA is the UK's largest national organisation run by Deaf people, for
Deaf people. We represent the Deaf community, a community united by
shared experiences, history and, above all, by a common language: British Sign Language.
British Epilepsy Association
Epilepsy Action is the working name for British Epilepsy Association.
Children's Trust Website
Children's Trusts integrate local education, social care and some health
services for children and young people. They incorporate an integrated
commissioning strategy delivered through a wide range of providers that is
designed to meet local evaluations of need.
Contact a family
Contact a Family provides support and advice to parents whatever the medical
condition of their child.
Connexions Service
Connexions offers advice and information for 13-19-year-olds living in
England.
Council
for Disabled Children
NCB promotes the interests and well-being of all children and young people
across every aspect of their lives. They advocate the participation of children
and young people in all matters affecting them and challenge disadvantage in
childhood.
DC
Educational Services
is dedicated to providing high quality educational and psychological services
to children and families. Our mission is to provide people with the information
and assistance needed to reach their educational goals and to increase
community understanding of the needs of individuals with learning difficulties
by using solution-oriented methods to address those needs.
Deafness@birthto2
Deafness @ birth to 2 is a training and information resource for professionals
who work with deaf babies and their families.
Disability Rights Commission
The Disability Rights Commission (DRC) is an independent body established in
April 2000 by Act of Parliament to stop discrimination and promote equality of
opportunity for disabled people.
Down's Syndrome Association
The only organisation in this country focusing solely on all aspects of living
successfully with Down's syndrome.
The Down
Syndrome Educational Trust online
is a registered charity, based in the UK, and a recognised leader in scientific
research into the development and education of individuals with Down
syndrome.
Dyslexia Institute
The Dyslexia Institute (DI) is an educational charity for the assessment and
teaching of people with dyslexia and for the training of specialist teachers.
It has grown to become the only national dyslexia teaching organisation in the
world.
Dyspraxia Foundation
This UK charity exists to help people to understand and cope with dyspraxia.
It's a resource for parents, teenagers and adults who have the condition,
and for professionals who help them.
Early Intervention Feasibility Study
Mencap, the learning disability charity, is leading this feasibility
study. The Department for Education and Skills has commissioned this
study as part of the new Special Educational Needs Strategy . The work is
funded until March 2005.
Early Support
This website provides information, news and up-dates on Early Support
(previously known as the Early Support Pilot Programme), a UK government
initiative to improve services for disabled children under three and their
families. The website promotes multi-agency working and is for anyone who works
regularly with very young children and their families.
Education Protects
The Education Protects programme is jointly funded by the Department of Health
and the Department for Education and Skills.
English
Federation of Disability Sport
This is the national body responsible for developing sport for disabled people
in England.
Every Child Matters
Every Child Matters sets out for consultation a framework for
improving outcomes for all children and their families, to protect them, to
promote their wellbeing and to support all children to develop their full
potential.
Family Fund Trust
The Family Fund helps families of disabled and seriously ill children under the
age of 16. It gives grants and information related to the care of the child.
The range of grants includes holidays, leisure, laundry equipment, driving
lessons and lots more.
Government Offices
Government Offices exist to manage regional programmes on behalf of
participating Departments, to support and facilitate effective linkages between
partners and programmes and to inform the development of Departments'
policies from a regional perspective:
Government office
for the East Midlands
Government office for the
East of England
Government office for
London
Government office for the
North East
Government office for
the North West
Government office for the
South East
Government office for the
South West
Government Office for the
West Midlands
Government office for
Yorkshire & the Humber
HemiHelp
We are a charity providing information and support to children and young people
with hemiplegia (associated with cerebral palsy) and their families. Our
professional members consist of SENCOs, teachers, educational psychologists and
others working with children with hemiplegia. Publications on our website
include dealing with emotional and behavioural difficulties, visual
perceptual problems and friendship and popularity in mainstream primary
schools. Other leaflets available from the office include: The
Student with Hemiplegia in Secondary Education and The Child with Hemiplegia in
Primary Education.
Hyperactive Childrens Support Group (HACSG)
HACSG is a charity offering information about children with
a hyperactivity problem.
I CAN (helping children
communicate)
I CAN is a charity that helps children with speech and language difficulties
across the UK. The charity works to create a society where their special needs
are recognised, understood and met, so that they have the same opportunities in
life as other children.
Inclusion
A catalogue of resources to support individual learning needs for teaching
professionals, parents, carers and learners. Resources include publications,
software, equipment and on-line information.
Inclusive Science and SEN
These pages aim to facilitate the sharing of good practice and ideas relating
science education for students with special educational needs. They display
some of the findings from the research and networking that has been undertaken
to support teachers. The information and resources presented here are evolving,
with continued input and updating. Recently added is the on line version of the
resources from the ISSEN CD-ROM.
Info
Ispeek
Info Ispeek is the free information section of Ispeek, a company producing
visual resources aiding people with autism to communicate. The information site
is a resource for anyone involved with autism/ASD to use or share.
INPP
The Institute for Neuro-Physiological Psychology (INPP) specialises in the
identification, assessment and remediation of underlying physical factors in
children with reading and writing problems, Dyslexia, Developmental
Coordination Disorder and Attention Deficit Disorder.
IPSEA
Tribunal Support Service
IPSEA is a volunteer-based organisation and many of the volunteers providing
telephone advice and support at Tribunals are themselves parents of children
with special educational needs who have been helped by IPSEA in the past.
KIDS
KIDS is a national charity dedicated to helping children and young people with
disabilities and special needs develop their skills and abilities and to
realise their potential.
Leukaemia Care Society
Leukaemia CARE, caring for sufferers of the leukaemias, Hodgkin's and other
lymphomas, myelodysplasia, myeloproliferative disorders, Myeloma and aplastic
anaemia.
MENCAP
MENCAP works with people with a learning disability, and their families and
carers.
Muscular Dystrophy Group of GB
The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular
dystrophies and allied disorders.
National Association for the Education of Sick Children
(NAESC)
NAESC ensures that all children and young people get the education they need
when they are sick.
National Association of Special Educational Needs
(NASEN)
NASEN is the leading organisation in the UK which aims to promote the
education, training, advancement and development of all those with special
educational needs.
National Asthma Campaign
For advice about asthma.
National Autistic
Society
The site includes information about autism and Asperger syndrome, and about the
support and services available in the UK for:
National
Blind Children's Society
To enable blind and partially sighted children and young people to achieve
their recreational and educational goals.
National Deaf Children's
Society (NDCS)
NDCS is an organisation of parents, families and carers which exists to support
parents in enabling their child to maximise their skills and abilities; and
works to facilitate this process by every means possible.
National
Institute for Clinical Excellence (NICE)
NICE was set up as a Special Health Authority for England and Wales and
is part of the National Health Service (NHS). Its role is to provide
patients, health professionals and the public with authoritative, robust and
reliable guidance on current best practice.
National
Library for the Blind
NLB-online is the website of the National Library for the Blind providing a
gateway to library and information services for visually impaired people.
Network 81
Network 81 is a national network of parents working towards properly resourced
education for children with SEN.
Nystagmus Network
Nystagmus is an eye condition characterised by rapid, jerky eye movements. It
is a symptom which should always be investigated by a specialist as it can be a
result of other disorders.
Nystagmus Network is a UK-based self-help group set up in 1984, providing
support for adults and children with nystagmus, their parents and teachers and
fostering research into the condition.
OnlineInset
This site provides online training to those working with children and young
people with special educational needs. It has been developed by the South
Central Regional Inclusion Partnership (SCRIP), and all local authorities
within the SCRIP region have unlimited free access to the courses on the site.
(See www.scrip.uk.net
for a list of these authorities)
Parents for Inclusion
Parents helping parents so their disabled children can learn, make friends and
have a voice in ordinary schools and throughout life.
Parent
Partnerships
The National Parent Partnership Network (NPPN) is established under the aegis
of the Council for Disabled Children to support the work of the parent
partnership services. NPPN is funded by the DCSF.
Portland College
Portland College is a national specialist residential college for a wide range
of people with physical disabilities, providing education and training for up
to 300 students aged 16 upwards.
Qualifications
and Curriculum Authority — Learning Difficulties
Planning, teaching and assessing the curriculum for pupils with learning
difficulties.
Renfrewshire Education and Leisure Services Additional Support
Needs Forum
A forum to encourage the exchange of information between parents
of children who need additional support in the short or long
term because of bullying, behavioural or learning difficulties, deaf or
blindness, bereavement, school attendance issues or being gifted children.
Reveal
This website brings together information about services and resources for
visually impaired people from organisations across the United Kingdom.
Royal
National Institute of the Blind (RNIB)
RNIB is the UK's leading charity offering information, support and
advice to over two million people with sight problems.
Royal
National Institute for the Deaf (RNID)
RNID is the largest charity representing the 9 million deaf and hard of hearing
people in the UK. As a membership charity it aims to achieve a radically better
quality of life for deaf and hard of hearing people.
SchoolNet Global
Half a million children around the world tell us about their lives, families
and communities making this the world's biggest children's contributory
website, promoting intercultural understanding and language learning.
SCOPE
SCOPE is a disability organisation in England and Wales. It focuses on
people with cerebral palsy.
Semantic Pragmatic Disorder Parents' Support Page
Semantic Pragmatic Disorder is a language communication disorder which is
commonly found in children on the Autistic Spectrum.
SENSE
Sense is a national charity that supports and campaigns for children and adults
who are deafblind. They provide specialist information, advice and services to
deafblind people, their families, carers and the professionals who work with
them. They also support people who have sensory impairments with additional
disabilities.
SEN
and Disability Tribunal
Parents whose children have special educational needs can appeal to the Special
Educational Needs & Disability Tribunal against decisions made by local
education authorities (LEAs) in England and Wales about their children's
education.
SEN Consultancy Project Cutting Red Tape &
Bureaucracy
Special Educational Needs (SEN) Consultancy Project — Cutting Red Tape
and Bureaucracy is a new project being conducted by the Cabinet Office's
Public Sector Team (PST) and the Department for Education and Skills.
Sickle Cell Society
A valuable resource for news, health issues, events and research.
Talking Point
Talking Point is your first stop on the internet for information about
speech, language and communication difficulties in children. Talking Point was
developed by I CAN, RCSLT and Afasic and is supported by
BT and additionally by the
Lloyds TSB
Foundation for England and Wales.
The National Society for Epilepsy
Here is a range of information on epilepsy, treatment and many aspects of
living with epilepsy. Most of the information listed below is also available
from us as leaflets and factsheets. To order information about epilepsy in the
form of leaflets, books or videos.
Welsh Initiative for Conductive Education
For Children with damage to the central nervous system:
World
Health Organisation (WHO)
The World Health Organisation is the United Nations' specialised agency for
health. Its objective is the attainment by all peoples of the highest possible
level of health.
YoungMinds
YoungMinds is the national charity committed to improving the mental health of
all children and young people.
